Sensory Processing Disorder, Sisters

Real. Life. Sucks sometimes.

Today started all wrong. The optimist in me says, “That means it can only get better!”. Let me explain.

My oldest daughter has Sensory Processing Disorder. Some of you know her and not the disease. Others of you don’t know her but have heard of and might even know someone who has SPD. Maybe you don’t know either “S” or SPD and maybe you know both.

Depending on the day I’m no sure which one I am! Today was a day that I only know ONE thing-that life is not fair. If it was, then S would be a typically functioning nine-year old. She’d be able to help me around the house and make friends easily. She wouldn’t know what it was like for people to make fun of her because she is different and would believe me when I tell her she is smart.

Instead I had to pull A (her younger sister) aside and ask her how she sees her older sister as being different from other kids. I reminded her to have extra grace for her sister that “doesn’t fit in” and can easily frustrate those around her because of those differences.

I don’t know all the right things to say and do. That keeps me dependent on God (and frustrated, sad, hopeful, angry). I’m just trying to keep it real here. It’s hard having a kid with “special needs”. It’s hard that she looks “normal” so people’s expectations of her aren’t any different from a typical child. It’s hard when people roll their eyes at me and wonder “where I went wrong” in raising her. It’s just hard!!

I was crying this morning during breakfast (remember how I said today did not start well?) M (our youngest) says to me, “Mom, are you crying because you feel sad for yourself?” I’m not a big fan of self-pity. I answered, “Yes, but I’m also sad for S and you and A, too.” Then I flipped the four pancakes onto the plate.

We have our first (after a long break) of Occupational Therapy appointments today. I’m not expecting a miracle. I am hoping for help.

That’s just real and it’s life. Thanks for listening.

La Gringa

p.s. If you or someone you know has a child with SPD please get this book for yourself/them. It speaks to parents on how to handle your marriage, siblings, extended family and friends, therapists and the lady at the store who keeps looking at you as if she could do a much better job of parenting your child than you.

Parenting a Child with Sensory Processing Disorder: A Family Guide to Understanding & Supporting Your Sensory-Sensitive Child

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9 thoughts on “Real. Life. Sucks sometimes.

  1. I had no idea that you were dealing with this with S! It is what we are dealing with with Kate. It definitely comes and goes, is triggered by who knows what, is incredibly frustrating and makes you feel like you have no idea how to parent. At least that’s how it is for me 🙂 Thanks for the book recommendation. I haven’t read any books yet on this disorder so that looks like a good one. Hoping today gets better!

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  2. Thank you sweet friends! We were just invited to a tea party-I’m sure they have those in Brazil in the Amazon, right? Since that’s what we’re studying….regardless-we are so taking up our friends on this timely offer and will return much more refreshed!

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  3. Laura Ickes says:

    Lori, I work with people that work with kiddos that have sensory issues. If you want strategies or specifics for specific behavior let me know and I will see what I can find out. You are not alone. There are a lot of kiddos with this in varying degrees but occupational therapy is a good start 🙂

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    • Thank you Laura! That is great to know. We are getting ready to have a second pediatric psych. evaluation with Children’s here in Denver. Hoping for some good direction on treatment there, too. I will keep you in mind!!

      Lori

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  4. Shawna says:

    Love you. You were chosen to be her mother because you know how to love her best with the spirit’s guidance. Praying for you as you seek out how to love her well and all that God wants to accomplish along the way. Galatians 6:9

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  5. That lady at the grocery store gives me that same look. Right after she asks, “Are ALL those kids yours?’ Like I’d bring someone ELSE’s kids to the grocery store just for kicks.
    Hang in there,
    Annie

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  6. Amy Y says:

    Wow! I had no idea you were dealing with that, either.
    For what it’s worth, I think all three of your daughters are fantastic and I think you’re a wonderful mama!

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    • Thanks, Amy! We have lots of fun-but life is real and it shows up like this from time to time! We aren’t promised a perfect life-which is hard sometimes…but God is good! Fun to have you back as a reader : )

      Lori

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